This Monumental research comes from the researchers at the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute was published in the New England Journal of Medicine on May 8, 2013 featuring a picture of Hunter Nelson in the findings. This news was covered all over the globe in renowned publications like the Wall Street Journal. "It was 12 years ago that we put our faith in Dr. Comi to help Hunter & children like him and eight years ago that Hunter passed away from SWS. We are so excited for the Sturge-Weber Communtity and what this means for the future. We are eternally grateful to Dr. Comi and the entire research team," said Robb & Wendy Nelson